Patient Privacy Rights, the health privacy watchdog, has enlisted the help of Zogby International to conduct an online survey of more than 2,000 adults to identify their views on privacy, access to health information, and healthcare IT. The results were overwhelmingly in favor of individual choice and control over personal health information.
Ninety-seven percent of Americans believe that doctors, hospitals, labs and health technology systems should not be allowed to share or sell their sensitive health information without consent.
The poll also found strong opposition to insurance companies gaining access to electronic health records without permission. Ninety-eight percent of respondents opposed payers sharing or selling health information without consent. […]
Ninety-one percent of Americans want to be able to decide which individual people can see and use their health information, according to the poll – which indicated that Americans are concerned not just about corporations intruding on their data, but also researchers, employees, and people with malicious intent, such as ex-spouses or abusive partners. […]
Only 5 percent of those surveyed said the government should make the decision on whether corporations and researchers can see and use the information in health records without permission. Moreover, most individuals don’t trust their doctors to make decisions for them. Just 5 percent believe their physician or other health professional should have that power. When asked who should have that power, 87 percent of respondents said, “you personally.”