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    Citizens’ Council on Health Care: Nine Families Sue State of Minnesota

    The Citizens’ Council on Health Care announced that nine families have filed a lawsuit against the Minnesota Department of Health, alleging violations by the Department “of the 2006 state genetic privacy law by its collection, storage, use and dissemination of newborn blood and baby DNA” without written, informed consent. CCHC and the plaintiffs also allege that, “as of December 31, 2008, Defendant Minnesota Department of Health had stored 819,282 dried blood spot baby samples; had stored 1,567,133 records of the results of newborn genetic screening; and had used 52,519 dried blood spot samples for research.” 

    Here’s the full filing by CCHC in Bearder, et. al. v. State of Minnesota and MDH. I’ve written a couple posts on babies, DNA, and privacy.

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